#356 From Statehouse to Capitol Hill: A Guide to Effective Advocacy for Rare Diseases

<p>What does it really take to move the needle on health equity for rare diseases, especially on Capitol Hill? In this episode, we are joined by <a href='https://www.linkedin.com/in/jenwaldrop04/'>Jenifer Waldrop</a>, Executive Director of the <a href='https://www.rarediseasediversity.org/'>Rare Disease Diversity Coalition (RDDC)</a>. Under her leadership, the coalition is tackling systemic inequities across the rare disease journey, from timely diagnosis to clinical trial access, treatment development, and sustained care.</p> <p>With partnerships across biotech, government, and patient advocacy groups, RDDC is reshaping the policy landscape to ensure historically underrepresented communities are not left behind. Right now we are capturing Jenifer’s insider perspective on advocacy strategies, legislative progress, and how every member of the rare disease community can engage in meaningful change. </p> Topics Covered in This Episode: <ul> <li style="font-weight:400;">Why the Rare Diseas...